Test Results and Some Everyday Art!

I had my second ever PET/CT scan, which came back clean, and my ca-125 seems to have leveled out at 20-21. This is all fabulous news, despite the fact that I’m still having pain episodes, and they’ve sort of gotten worse. We are as convinced that it’s scar/nerve pain, as we are stumped as to…

Girl Talk…

Covers many topics: life, relationships, food, fashion, friends, school, work. Happens everywhere: cafes, living rooms, gardens, museums. Over lunch, over dinner, coffee, tea, wine, or water. Or in the outpatient transplant clinic at Johns Hopkins Hospital, over a bag of packed red blood cells. She’s recovering from a stem cell transplant, and it’s a rough…

Heavy

There’s been a lot of suffering and dying on Planet Cancer, recently. Several friends are struggling with relapses. Somebody had a cord blood transplant (35 years old). Somebody’s in the middle of chemo (late 20’s). Somebody has stage 4 breast cancer with brain mets–(26 years old)–her 3 word text to me was all she could…

Making Sense of the Nonsensical

I just read a couple of articles about fearless, beautiful, rad women who rock their bald heads. Many are cancer survivors. They experiment. They make statements, fly on planes, go to rock concerts, attend fashion shoots for Vogue, dance professionally, walk the red carpet at the Grammys, start foundations, smile in photographs, blog, wear tight…

The Bathroom

There’s a public restroom, in the waiting area of the Outpatient Chemo Clinic at Mercy. There are several bathrooms in the back treatment area as well, available for patient use when we are there. They’re definitely more sterile and sanitary, than the one that anybody from off the street can use. Often times though, one…

A Point In My Favor

Woo Hoo! I spoke to the head nurse at Mercy today, and my ca125 which was drawn last week, is 20–a full point lower than it was last month!! It’s the first downward movement in almost a year, and it’s great news! I expected it to have gone up, considering what a big pain episode…

Catching Us Up

During the last week of April, I: 1. Saw my ex again. 2. Had the worst pain episode ever. I could barely walk or stand up straight. I was nauseated.Aleve wasn’t touching it. It was right before I was scheduled to leave for NYC, and I was worried that I wouldn’t be able to go.…

Afterward

I was angry in that last blog post. I feel better now. I saw my ex-boyfriend yesterday, which I don’t think helped. Things are the way they need to be with him, but it’s sad, regardless. I wore jeans two days in a row: yesterday and the day before. Each of those days, I popped…

Angelina Jolie is Pissing Me Off

Everyone is falling all over themselves, congratulating her for her flowery talk of prophylactic oophorectomies and preventing cancer. Basically, she’s a fucking saint, and I’m a terrible person. I’m just going to say it: Fuck Angelina Jolie: mother of 7, married to Brad Pitt, movie star. No longer in a position where she needs to…